7th China Rare Disease Summit 2018 to Highlight Global Challenges and China's Role

VCBeat (WeChat ID: vcbeat) has learned that the 7th China Rare Disease Summit will be grandly held at the Sofitel Shanghai Sheshan Oriental from September 14 to 16, 2018. The conference is jointly organized by the Shanghai Clover Rare Disease Family Care Center (also known as the Center for Rare Diseases Development, abbreviated as CORD) and the Children's Hospital of Fudan University (National Children's Medical Center). The organizers will invite experts and scholars, clinicians, pharmaceutical companies, sequencing institutions, government departments, rare disease organizations, patient families, and media representatives from both domestic and international rare disease fields to participate. The number of attendees is expected to exceed 700!

Rare diseases represent one of the greatest challenges facing human medicine. Currently, nearly 7,000 rare diseases have been identified, with 80% caused by genetic defects and thus being hereditary. Through the concerted efforts of all stakeholders, significant progress has been made in research, diagnosis, treatment, and healthcare coverage for rare diseases across various countries and regions. Among them, China stands out as one of the most active nations in this field.

At that time, experts and scholars, clinicians, pharmaceutical companies, sequencing institutions, government departments, rare disease organizations, patient families, and media friends from both domestic and international fields of rare diseases will jointly participate in the conference to promote win-win cooperation and development in the cause of rare diseases.

Organizers: Shanghai Clover Rare Disease Family Care Center (also known as the Center for Rare Diseases, abbreviated as CORD), Children’s Hospital of Fudan University (National Children’s Medical Center)

Conference Chair: Professor Huang Guoying, President of Children's Hospital of Fudan University

Executive Chairman: Mr. Huang Rufang, Founder and Director of CORD

Executive Chair: Professor Zhou Wenhao, Vice President of Children's Hospital of Fudan University

September 14–16, 2018

Sofitel Shanghai Sheshan Oriental

The China Rare Disease Summit, launched in 2012 and held annually, has successfully convened six sessions to date. As the largest comprehensive forum in the field of rare diseases in China, it aims to strengthen exchange and cooperation among stakeholders. By presenting and fostering the collision of authoritative perspectives from industry experts, the summit plays a significant role in policy advocacy and multi-party collaboration. The China Rare Disease Summit is committed to advancing the development of rare disease initiatives in China and promoting global progress in this field through academic exchange.

In September 2017, the 6th China Rare Disease Summit, held in conjunction with the 12th International Conference on Rare Diseases and Orphan Drugs (ICORD), was successfully convened in Beijing. Established in 2005, ICORD is an international association dedicated to the field of rare diseases and orphan drugs, hosting its annual conference in a different country each year. Last year marked the first time the ICORD annual meeting was held in China. The conference centered on the theme “Global Challenges in Rare Diseases and China’s Role,” bringing together more than 800 attendees, including 120 experts and scholars from diverse sectors such as government, research institutions, the medical community, pharmaceutical companies, and foundations, as well as representatives from patient organizations, patients and their families, charitable individuals, and media professionals.

· The largest and most professional comprehensive rare disease forum in China

· China's Most Comprehensive Stakeholder Engagement and Dialogue Platform

· A showcase platform for the latest diagnostic and therapeutic products and services from China and abroad

· The Latest Policy Dialogue Platform for Rare Diseases in China and Abroad

Speakers are still being invited. For more detailed speaker information, please visit the official website:http://www.cord.org.cn/nav/24.html

Main Agenda of the 7th China Rare Disease Summit

For more agenda information, please click to view:http://www.cord.org.cn/nav/23.html

How to Register

Registration Link:https://mv.lingxi360.com/m/oja0hf