12th Annual ICORD Conference and 6th China Rare Disease Summit 2017 Announces IPO Filing

2017The 12th International Conference on Rare Diseases and Orphan Drugs & The 6th China Rare Disease Summit (12th Annual ICORD

 Conference and 6th China Rare Disease Summit 2017) will be held on2017Year9Month7Day-10in BeijingJWGrandly Held at the Marriott Hotel.

This conference is organized by the International Rare Diseases & Orphan Drugs Congress (ICORD), Rare Disease Development Center(Chinese Organization for Rare Disorders, CORD), co-hosted by Peking Union Medical College Hospital. The organizers will invite experts and scholars, clinicians, pharmaceutical companies, sequencing institutions, government departments, rare disease organizations, patient families, and media friends from around the world to participate. The number of attendees is expected to exceed700people. At that time, the global spotlight will be on China, with all stakeholders revolving around“Global Challenges of Rare Diseases and China’s Role”engage in exchanges and cooperation on this topic.

Rare diseases represent one of the greatest challenges facing human medicine, with nearly7000a rare disease, and80%It is caused by genetic defects and is hereditary. We have seen that, through the joint efforts of all stakeholders, countries and regions around the world have made significant progress in the research, diagnosis, treatment, and healthcare coverage of rare diseases, with China being one of the most active countries in this field.

However, we must also confront the immense challenges faced by patients worldwide. Core issues such as severe shortages of medical care and medications, sluggish progress in scientific research, and high global policy barriers constantly remind us that rare diseases must be prioritized as a critical social issue within the global public health agenda. This year9In [Month], we gather in Beijing and cordially invite you to participate in this conference, working together to promote the mutual benefit and development of the global rare disease cause.

This conference will invite nearly global100top experts and scholars, focusing on the following eight key topics:

● Clinical Diagnosis, Treatment, and Advances in Rare Diseases

    Rare disease clinical care and research

● Orphan Drug R&D and Translational Medicine

    Orphan drug R&D and translational medicine

● Precision Medicine and Rare Disease Diagnosis

    Precision medicine for rare diseases

● Research on the Registration System for Patients with Rare Diseases

    Rare disease patient registry

● Policy Developments in Rare Diseases and Orphan Drugs

    Rare disease related policies

● The Role of Patient Organizations for Rare Diseases

    Roles played by patient organizations

● Global Collaboration and Joint Action on Rare Diseases

    Global collaboration on rare diseases

● “Our Story”

    Our Rare Story

Conference Highlights ：

● The Most Influential in the Field of Rare Diseases and Orphan DrugsICORDThe conference is being held in China for the first time.

● Comprehensive Presentation of China’s First National-Level Rare Disease Registry Study Project

● The World’s Leading Experts in Basic and Clinical Research on Rare Diseases Convene

● Bringing Together Orphan Drug Regulatory Authorities and Policymakers from China and Abroad

● Stakeholders in Rare Diseases and Orphan Drugs from China and Abroad Discuss Global Cooperation Roadmap

● Issuing the Beijing Declaration to Advance Rare Diseases as a Global Public Health Priority

Conference Official Website:www.icord2017.com